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All is well on the health front. So far so good on round 2 of chemo. This post is mostly an update on the upcoming benefit event.
Kebostock Event Details
My brother-in-law, Albert Simpson, has orchestrated a two-day benefit event for me in Gadsden, Alabama. Here are the details.
September 21-22, 2012
Friday Night (6pm to midnight)
The party begins at Back Forty Beer Co with musical performances by:
Saturday Afternoon (noon to 5pm)
The family-friendly fun continues at Etowah county’s largest outdoor musical venue, Willie’s Woods. The day’s activities include:
- More music (see below)
- Silent Auction
- and lots of eating and drinking
Musical performances by:
Raffle tickets will be sold for the following items:
- Ibanez electric guitar from Oden Music Co.
($5/ticket, only 200 tickets will be sold)
- Fender Acoustic Guitar from Oden Music Co.
($10/ticket, only 200 tickets will be sold)
- Happy Everything Platter with Happy Birthday attachment from Gifts on Wings
- One set of drum sticks signed by Mark Herndon drummer for Leah Seawright and formerly the group Alabama
- His (Brunswick) and Her (pink, Cuetec) pool cues from Alabama City Billiards, ($10/ticket for BOTH cues, only 200 tickets will be sold)
- There will also be 50-50 drawings
Tickets will be available to buy soon as well as at the events.
Some artists have donated pieces for the benefit. Pieces include:
- Turned wood by acclaimed woodturner, Phil Colson
- Mixed media pieces by stencil artist, Nathan Phaneuf
- Found-object and variegated art by Sharon Maudsley
- Two Numbered fine art prints.
One is of a painting by Ted Kennedy (who died from the same cancer I have).
Food and drink will be available at the event.
- Good-ol’ church cookin’ by the Episcopal Church of the Resurrection
- Matt Keener will be on site cooking up his famous red beans and rice
My good bud, Jeremy Crawford will be supporting us by doing “Tattoos for Kebo” at his shop, Old School Ink, located at 154 Jester Parkway, Rainbow City, AL, (256) 442-5331.
Everyone, Come For the Fun
This is a benefit event to assist my wife and I in our struggle with my terminal brain cancer. If you were directed to this page for event details, but don’t know anything about me, you can learn more on the HOME page. Even if you can’t donate, you can come out as part of the community and have a good time.
In addition to sponsors listed above, I want to thank some others:
- We’ll be selling t-shirts designed by me to commemorate the event. Big thanks to my friends at Atlanta Shirt for donating shirts and printing! Ya’ll kick ass!
- Dr. Dierick and Holly Sparks for providing drinks!
- Tu’Kanoos for the armbands
- Paul Harris, State Farm agent
- Last and least, Kent Kimes for coming up with the name, “Kebostock.” Thanks, Kentavo!
Post Chemo Update and Site Revisions
It’s been four days since I received my Avastin and Irinotecan infusions. So far, it has been very tolerable. I’ve experienced some times of being very tired where my body felt like a lead weight and I slept or napped more than usual. No nausea or any other ill effects to report. If this therapy works and I can continue to tolerate it well, then I’ll be very happy. I have to give credit to Tina for making sure I stay hydrated, eat the right things and walk and exercise.
We now own the domain name, glioblasted.com. It’s just a little easier to type glioblasted.com into a browser instead of glioblasted.wordpress.com, but either URL will work. To be honest the decision kind of had to do with branding. Since I worked in advertising and web strategy before my cancer, I guess it’s kind of ingrained in me to think like that. One difference is that usually you WANT your site to get lots of page views. In my case it just means way too many people are affected by this horrible cancer.
In the beginning I wasn’t sure what the purpose of this site would be. It’s more clear to me now so I’ve begun to go back and edit some of the pages and posts in an attempt to make it easier for the disturbingly high number of people affected by GBM to distinguish useful information from my introspective ramblings.
The event plans for September 21 and 22 in Gadsden are coming along great. Some fantastic sponsors have been very generous, donating venues and services as well as items to auction or raffle off, including: music equipment, artwork, memorabilia, printed t-shirts and more. But the main attraction will probably be the bands that have volunteered to perform and getting to reconnect with old friends and my hometown community to celebrate life.
I’ll post more details soon.
Happy Labor Day weekend!
Save the Date
Save the date for a two-day party in my home town, Gadsden, Alabama. It’s an opportunity to get together with friends and family as well as unite as a community. Details are still being worked out but we do know dates and places.
- DATE: Friday, September 21, 2012
- TIME: 6pm to midnight (CST)
- LOCATION: Back Forty Brewery, Gadsden, AL (backfortybeer.com)
- BANDS: To be announced
- DATE: Saturday, September 22, 2012
- TIME: noon to 5pm (CST)
- LOCATION: Willie’s Woods, Rainbow City, AL (www.willieswoods.com)
- BANDS: To be announced
My brother-in-law, Albert Simpson, has been helping us through my cancer journey since day one. It was his idea to put together a benefit event. He’s a musician (www.albertsimpson.com) and will perform, but he ran with the idea and is growing the event into something pretty big, with several bands, a silent auction, good cookin’ and some other activities in the works.
We’re trying to raise a little money to help with travel and bills. I’ve added a DONATE page to this website to help explain more about our needs and situation.
But more importantly, the benefit is about getting to have a good time with friends old and new. It’s impossible to have one-on-one visits with all the people I want to see again so why not gather everyone together for a celebration?
More details to come soon!