Let the Extended Maintenance Phase Begin
Chemo Time
Today I rehash my relationship with chemotherapy (Temodar). It’s difficult to embrace taking chemo because it might be beneficial for me, but it could also leave me weakened and hurting.
I start chemo tonight before bed. I will take a dose double that which I took previously. I take it for five consecutive days at the beginning of every month for the next 12 months.
Cross Training
The weakness/soreness is my knee is probably from de-conditioning rather than treatments, so part of my next-phase regimen is to increase my physical activity as I enter this new phase of treatment. Yoga, weight lifting, old-school calisthenics and biking (bicycling, that is).
I haven’t been on a bicycle in… possibly two decades. I dusted off an old ten-speed this afternoon and went for a short ride through my hilly neighborhood. Let’s just say, I’ve got a lot of work to do to get back into shape. My quads got sore; my heart beat fast; I’m tuckered out. But it feels good, and it was fun. (Not as fun as the motorcycles, but better for my health.)
Tail of the Dragon at Deal's Gap (US129), NC, 2007
9 responses to “Let the Extended Maintenance Phase Begin”
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Ways to Help
Your thoughts, well-wishes, encouragement and positive vibes are a big help. Financial donations to my fight are welcome as well. Please visit my Donate page for an explanation of how and why donations are helpful.
Meal Train
Sign up to bring us a meal via Meal TrainMEALTRAIN WAS A VERY HELPFUL RESOURCE FOR US BUT NOW IT HAS EVOLVED INTO BRINGING US SPECIFIC UNCOOKED INGREDIENTS BECAUSE of the wtict diet we are on.This is just as valuable to us though..
A glioblastoma journey 
Hang in there Ken. I am praying for you.
Barbara McLendon
Ken, your humor continues to amaze me! I can imagine that the exercise is rough but I know that you will also find some good humor in getting back on the ‘ole two wheel bicycle… Heck maybe you and Tina could get one of those tandem bikes!! Now there’s a story!!
Thinking about you all;)
You do know our tandem bike story, right?
Getting back to the basics of anything is always healing. Keep it up,Bro!
Hey, is that you or Zac De La Rocha in the picture with the bicycle? You’re in my thoughts and prayers, bro. Sending you much love and positive karma. Hopefully we can get together over the holiday.
Ken,
It was nice to see you yesterday for lunch. I am glad that you are feeling good. Also, if you do not have a biking helmet, you can borrow Davis’ Elmo Helmet if you want. Let me know!
Take care!
Julie
Looking forward to biking Sunday.
Thanks for your web page writeups…
I went thru the brain operation in Atlanta just a little after you (Sept 30)
I did Phase 2 in Bloomington IN Nov 1 to Dec 15th
I begin phase 3 in Indianapolis on Jan 16th for the whole year
I hope you had a great Christmas and enjoy New Years!!!
Rusty.Phillips@amec.com
Thanks, Rusty. I would love to hear more of your details if you are interested in sharing.