It is mid-April and the weather is beautiful here in Atlanta, Georgia (as long as pollen everywhere doesn’t disagree with you.
My previous dose of chemo (Lomustine) was about three weeks ago, which is the time period where we saw my blood levels dropped last month and I had to have a platelet transfusion. My numbers seem to be holding pretty well this time. There were some slight drops, but nothing concerning and platelets are fine.
Side Effects and Challenges
I have occasional headaches and pressure in my head which suggest swelling in the brain. To remedy this, I increase my dosage of steroids. The problem with this solution is that steroids have a whole set of unpleasant side-effects, including:
- muscle weakness. Tina and I take several walks daily, but weak thigh and calf muscles make these walks quite a chore. (No one said recovery and acheeiving good health was going to be easy, so I carry on and am glad we have pleasant nature walks near the house.
- voracious appetite. The steroids make me want to eat a LOT. Self-restraint is tough. I over-eat. My weight is fine, but I see how it could get out of control. At least we are eating good food. I often repeat Michael Pollan’s quote to myself, “Eat food, not too much, mostly plants.”
- Blackouts. I’ve had some bouts of feeling unsteady, almost like I’m going to black out. We’re fairly certain these are not seizures. I am conscious of what is going on and know I just need to sit down for a few minutes to recover. Tina can see these episodes coming on and it’s a little scary for her. As long as I can communicate that I’m ok, she is able to not panic and help steady me.
Tina and I were asked to participate in a video/photo shoot for a fundraising event for the Atlanta Cancer Care Foundation which provides some financial assistance for patients like me. The event is sponsored by the Legal Function of The Coca-Cola Company. So, Tina and I shared some of our experiences and these video clips may be used in a video at the fund-raising gala at the World of Coca-Cola.
I’ll have another MRI in mid-May.
I feel as though things are going very well.