Seizure Free
Since my last seizure Memorial Day weekend, I am happy to report that I haven’t had any seizures! I attribute this to the change in my diet by upping the level of MCTs, medium-chain triglycerides, to 100% by adding more liquid coconut oil. Medium-chain triglycerides are generally considered a good biologically inert source of energy that the human body finds reasonably easy to metabolize.
CDX-110 Update
We are glad to report that the medicine will hopefully arrive in two weeks time. I will be weaned down on my dexamethasone medicine from 4 grams daily to 2 grams so that the experimental medicine can boost my immune system to fight the cancer.
Atlanta Cancer Care Fundraiser Video
Tina and I were interviewed to be included in a fundraising video for the Atlanta Cancer Care Foundation (see link below).
Ramp Progress
My sister Sharon has been visiting for the past week. She’s been a great help with meals and she’s added to the ramp.
6 responses to “Seizure Free”
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Ways to Help
Your thoughts, well-wishes, encouragement and positive vibes are a big help. Financial donations to my fight are welcome as well. Please visit my Donate page for an explanation of how and why donations are helpful.
Meal Train
Sign up to bring us a meal via Meal TrainMEALTRAIN WAS A VERY HELPFUL RESOURCE FOR US BUT NOW IT HAS EVOLVED INTO BRINGING US SPECIFIC UNCOOKED INGREDIENTS BECAUSE of the wtict diet we are on.This is just as valuable to us though..
A glioblastoma journey 
What a praise. I know that every day without seizures is a great day. Praying for you, friend. Glad your sister got by to help Tina out. Looks like you all had fun.
I was hoping to stop by this past weekend, but ran out of time. Hopefully I can call and drop by this weekend if you all are feeling up to it. I dig the ramp art and would like to hear about it!
… not many chances to use the word Rampart. Remember the TV show “Emergency”?…the hospital was Rampart General, I think.
–Rob
What a great report! Amazing how you have become so proactive! You should be able to add M.D. after your w/o further education.
The ramp is great! Prayers continue! Love you guys!
Ken and Tina, the news of the new medicine is wonderful. We personally LOVE coconut oil and use it for everything from cooking to baths to supplements for our dogs. It’s awesome stuff.
You both looked GREAT on that video. What an awesome organization. Thinking of you both always and lifting you up,
Joy & Kat
No more seizures is wonderful news.
Nice job on the interview with the ACCF, Ken and Tina. I’m glad they are assisting you and others in so many ways, and I hope their fundraiser is successful.
Rampart…new imagery for the “Star Spangled Banner” (O’er the ramparts we watched…)
So happy to read this wonderful news!! Thanks for sharing Ken.
This is such great news, Kebo! You and Tina continue to be in my prayers.
(I like brussel sprouts!)
– Mark