We have useful tools that we need to deal with this stage of my illness. Our handicapped tag finally arrived & I have a hospital bed for when needed (I continue to scale the stairs at night to get into my own bed).
Northside Hospital sent the contract to Celldex last week and they have sent back some of the documents needed to the clinical trial coordinator here in Atlanta so that she can start the preparations to be sent to the FDA for final approval. Hopefully, all will go smoothly now and I will get the medicine soon.
I received my twin sized hospital bed a few days ago which is located in the library of our house downstairs. This way I can look out at the garden and hear our fountain outside. Our physical therapist also recommended that Tina use a gait belt to help me with moving around, transfers and to ease/prevent falls.
How am I Doing
Well, I have had two more focal seizures this week; one probably due to caffeine, drinking strong, Finnish coffee (caffeine is a potent stimulant and trigger for seizures – Tina tried to warn me not to have the coffee but I insisted) and the other from overexertion, both of which are triggers for seizures. My threshold for seizures is definitely low. As a result, our dietician has modified our diet too by increasing the MCT oil or liquid coconut oil in all of our meals. We have been eating modified meals since Wednesday evening and my glucose this morning was the lowest it has ever been, 65 which is great news! GBM cancer cells depend on glucose for energy supply and survival. When glucose levels are reduced, normal brain cells metabolize ketone bodies for energy. Brain tumor cells cannot do so. This makes the tumor cells vulnerable to death using therapies that target glucose metabolism.
I am experiencing more fatigue but am keeping my energy level up by continuing physical therapy and painting my wheelchair ramp.
I had another pranic healing session yesterday and am hoping to start Qi Gong next week (my neighbor teaches and has offered to come to the house to do one on one sessions).