“Avoid Knives and Mosh Pits”
“Avoid knives and mosh pits,” was the advice of my oncologist’s nurse practitioner last week when she informed me that my blood platelet count was dropping very low. Platelets prevent bleeding.
Saturday night I did have a lot of nose bleeds. I was tested again on Sunday and the platelets had dropped further. After today’s re-check I was taken immediately for a transfusion.
Decreased platelet count is an expected effect of chemo, so this is no big surprise. It is my first experience with it though.
The transfusion of donated platelets should last about three days at which point I will be tested again. Hopefully my bone marrow will start generating platelets again so that I don’t need another transfusion. Luckily, the transfusion is quick and relatively painless.
I’m having some minor vision issues. I noticed while helping Tina list items to sell on eBay (mostly women’s clothes).
I don’t have significant pressure or headaches but occasionally have some curious sensations in my head.
I don’t fixate on symptoms or the tumor because I believe that “where thoughts go energy flows.” I don’t want to empower anything negative.
My muscles are weak which can also be attributed to chemo and steroids. Also, I have gotten away from a regular yoga practice. We walk quite a bit every day. Spring is almost here. By then, I expect to get back to some physical training, including yoga.
My next MRI is in two weeks. Then, we’ll go consult with Duke again.
Although Duke said we were running out of options, that is not entirely true. The NIH contacted us to report that I do qualify for their super aggressive immunotherapy study.
While an aggressive, progressive or risky treatment might seem a reasonable plan of action for where I’m at now, I’m inclined to choose a natruopathic approach. That is, nourish my body, mind and energy so that it is in an optimal state to fight the tumor itself. This probably sounds ridiculous to some people and it may very well be, but their are no clear choices. This is tough.